Pre-Meeting Clinical Workshop

Monday, 7 July 2025
8:30 am - 3:30 pm

Hypereosinophilic Syndrome Pre-Meeting Clinical Workshop:
Novel Tools for Translational Research in Rare Eosinophil Associated Diseases

The Pre-Meeting Clinical Workshop is not included in the regular registration rate and can be added for an additional fee during the registration process. 

Workshop Supporters

Silver Level

Bronze Level

Calman Prussin & Daphne Shye

Funding for this workshop is made possible (in part) by support from NCATS. The views expressed in written conference materials or publications and by speakers and moderators do not necessarily reflect the official policies of the NIH; nor does mention of trade names, commercial practices, or organizations imply endorsement by the U.S Government.

Session I: Introduction

 

8:30 am – 8:45 am

Welcome and Workshop Objectives

Amy Klion, United States 

8:45 am – 9:00 am 

2023 IES Pre-Meeting Workshop Review and Recommendations

Florence Roufosse, Belgium  

9:00 am – 9:15 am 

International Multicenter Registries: Rewards and Challenges 

Guillaume Lefevre, France  

9:15 am – 9:30 am 

Outcomes Measures and Biomarkers: Guiding Principles for Regulatory Approval

Tiina Urv, United States

9:30 am – 9:45 am 

Machine Learning and Artificial Intelligence in Rare Diseases: Promise and Pitfalls

Paneez Khoury, United States

Session II: Enhancing Diagnosis and Clinical Outcomes

Moderator: Matthieu Groh, France

 

10:00 am – 10:30 am 

Clinical Decision Support: Approach to Rare Disease Diagnosis and Treatment

TBA

10:30 am – 11:00 am 

Research Proposal Presentations

 

Session III: Computer Vision (Imaging)

Moderator: Simin Zhang, United States

 

11:00 am – 11:30 am 

AI Innovations in Rare Disease Research: AI for Chest CT in Interstitial Lung Diseases

Guillaume Chassagnon, France

11:30 am – 12:00 pm 

Research Proposal Presentations

 

Session IV: Biomarkers

Moderator: Manali Mukherjee, Canada

 

12:30 pm – 1:00 pm 

Novel Biomarkers: Cell-free DNA from Science to Practice

Sean Agbor-Enoh, United States

1:00 pm – 1:30 pm 

Research Proposal Presentations

 

1:30 pm – 2:00 pm 

Focus Group Discussions

 

Session V: Conclusions

 

2:15 pm – 3:15 pm 

Presentations by Focus Groups

 

3:15 pm – 3:30 pm 

Summary and Action Items

 

Last updated: May 12, 2025

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