Pre-Meeting Clinical Workshop
Monday, 7 July 2025
8:30 am - 3:30 pm
Hypereosinophilic Syndrome Pre-Meeting Clinical Workshop:
Novel Tools for Translational Research in Rare Eosinophil Associated Diseases
The Pre-Meeting Clinical Workshop is not included in the regular registration rate and can be added for an additional fee during the registration process.
Workshop Supporters
Platinum Level
Silver Level
Bronze Level
Calman Prussin & Daphne Shye
Funding for this workshop is made possible (in part) by support from NCATS. The views expressed in written conference materials or publications and by speakers and moderators do not necessarily reflect the official policies of the NIH; nor does mention of trade names, commercial practices, or organizations imply endorsement by the U.S Government.
Session I: Introduction |
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8:30 am – 8:45 am |
Welcome and Workshop Objectives |
Amy Klion, United States |
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8:45 am – 9:00 am |
2023 IES Pre-Meeting Workshop Review and Recommendations |
Florence Roufosse, Belgium |
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9:00 am – 9:15 am |
International Multicenter Registries: Rewards and Challenges |
Guillaume Lefevre, France |
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9:15 am – 9:30 am |
Outcomes Measures and Biomarkers: Guiding Principles for Regulatory Approval |
Tiina Urv, United States |
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9:30 am – 9:45 am |
Machine Learning and Artificial Intelligence in Rare Diseases: Promise and Pitfalls |
Paneez Khoury, United States |
Session II: Enhancing Diagnosis and Clinical OutcomesModerator: Matthieu Groh, France |
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10:00 am – 10:30 am |
Clinical Decision Support: Approach to Rare Disease Diagnosis and Treatment |
Amy Klion, United States |
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10:30 am – 11:00 am |
Research Proposal Presentations |
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Session III: Computer Vision (Imaging)Moderator: Simin Zhang, United States |
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11:00 am – 11:30 am |
AI Innovations in Rare Disease Research: AI for Chest CT in Interstitial Lung Diseases |
Guillaume Chassagnon, France |
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11:30 am – 12:00 pm |
Research Proposal Presentations |
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Session IV: BiomarkersModerator: Manali Mukherjee, Canada |
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12:30 pm – 1:00 pm |
Novel Biomarkers: Cell-free DNA from Science to Practice |
Sean Agbor-Enoh, United States |
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1:00 pm – 1:30 pm |
Research Proposal Presentations |
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1:30 pm – 2:00 pm |
Focus Group Discussions |
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Session V: Conclusions |
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2:15 pm – 3:00 pm |
Presentations by Focus Groups |
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3:00 pm – 3:30 pm |
Summary and Action Items |
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